Spinal Cord Injury Alberta





















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Developing a new model of care for spinal cord injury


Rick Hansen SCI Registry provides a baseline for the collection of critical data in Alberta

When you hear about spinal cord injury (SCI), you often hear about the traumatic causes – for example, those sustained from serious falls or car crashes. However, of the 86,000 Canadians living with a spinal cord injury, about half of those individuals sustain their injury from "non-traumatic" causes, such as infections, tumours, neurodegenerative or congenital diseases.





Take the SCI Alberta survey to help us decide what topics to cover for the SCI Alberta Peer Conference in May.


We have partnered with UBC to conduct a study about family, friends and partners that support people with an SCI. Receive $20 to participate.




Shape the future of doctor/patient care by responding to a short survey.  You can do the survey here: https://extranet.gov.ab.ca/opinio_test/s?s=27518  It closes Jan. 28.


“Virtual care’ is the use of new and emerging digital and communications technologies to provide care and education to patients remotely. Virtual care may include health and wellness tools for education and prevention (e.g., Fitbit), virtual visits with providers for prevention, diagnosis, and treatment (e.g., phone, email, text, video), and remote monitoring for diagnosis, treatment, and disease management (e.g., wireless self-test devices that track and transmit heart rate and blood pressure information to a provider). Though the specific applications of virtual health can vary, the foundational elements remain the same: greater information flow across digital channels, and care that goes beyond the traditional settings of physicians’ offices and hospitals to wherever the patient happens to be.


Alberta Health is in the early stages of exploring a Virtual Care Discovery Project that will enable providers to connect with their patients using email, phone, and videoconference. For the purposes of this survey, we are asking for your input to better understand how Albertans feel about accessing health care virtually using email, phone, and videoconference.


Your responses to this survey will remain anonymous. This survey will take about 10 minutes to complete.


If you have any questions regarding this survey, please contact health.virtualcare@gov.ab.ca.”



Premier’s Council on the Status of Person with Disabilities (Council) listens to the disability community

Council wants to get help to inform their strategic plan.
We want help from people with disabilities, their families and care givers and communities because we want to get this right.

You can help by providing your experience and thoughts to inform the development of the strategic plan.

We are asking 2 questions and need to hear from you by February 9th, 2018.

The Council’s Mandate is to give advice to the Government of Alberta about inclusion and accessibility for persons with disabilities. The Council gives advice from our own lived experience with disabilities and by connecting with local communities.

Our advice must honor the principles of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). The full text UNCRPD can be found through the following link:


Send your response to the Premier’s Council on the Status of Person with Disabilities

Email: hs.pcspd@gov.ab.ca
Phone: 780-422-1095

Did you know?

A Statistics Canada, 2012 report estimated there are 3.8 million people 15 years and over in Canada that say they have a disability? According to the same survey, approximately 13.9% Albertans identify having a disability.

The Council provides advice to government departments on their policies and programs to ensure these policies consider the impact it may have on people with disabilities and how they can be included in everyday life.

A new Council, a fresh approach.

Council is embarking on a process to establish a strategic plan that will act as a guide for the important work of providing advice to government regarding opportunities for full and equal participation of persons with disabilities in the life of the province.
Council wants to hear from you.

To purchase your tickets now CLICK HERE

Yesterday was an important milestone for AISH. We’ve introduced a newsimplified AISH application form and user-friendly how-to guides that make it easier for Albertans to apply for AISH and understand the AISH program.


The new form and guides were developed with input from community partners, health service organizations, medical professionals, AISH applicants, clients and staff from across the province.


The new application form is shorter, written in easy to understand language, and aligns with legislation. The Your Guide to AISH gives an overview of the AISH program and application process, while the Your Guide to Completing the AISH Application offers Albertans step-by-step instructions to fill out the new form. These resources are available on the AISH website at www.alberta.ca/aish.aspx and will be further supported with a public rollout in January 2018.


This work is part of the AISH Action Plan implementation that’s underway to improve the AISH system so it’s easier for Albertans to navigate and more responsive to their needs. During 2017, we developed new resources such as the AISH website and standardized letters with better information for Albertans. We also took steps to improve the appeal process, learn from appeal panel decisions and internal audits and establish new performance measures to monitor and publicly report on AISH processing times and efficiencies.


In the coming months, Alberta Community and Social Services will be completing the remaining Action Plan initiatives, which include introducing a new AISH Adjudication Guide and provincial training strategy, further streamlining application processes and providing more personalized supports and coordinated intake processes to help Albertans access the right programs at the right time.


Thank you to Marika Giesen, and the Strategic Initiatives Management team for their leadership in this work. I also want to extend my gratitude to the AISH Action Plan Steering Committee, task teams and experts who have contributed to these achievements. Through their collaborative efforts, we’ve made significant progress addressing the Alberta Auditor General’s recommendations to improve Albertans’ experiences when applying for, or receiving supports from AISH.



Shannon Marchand

Deputy Minister









New information about experimental treatments for spinal cord injury. 

An updated and revised version of the popular and informative publication "Experimental treatments for spinal cord injuries: what you should know; a guide for people living with spinal cord injuries, their families, friends and health care professionals" is now available for download



Accessible Housing (Calgary) has launched thier admissions process for Inclusio, the 45-unit build in Calgary that we’ve been working on.


Residents will be adults with mobility barriers, who need a mix of supports (home care + 24/7 staffing) and independence (separate apartment units, kitchenettes).


Everything you might want to know, and the screening tool itself (the first step in the application process) is all here http://accessiblehousing.ca/inclusio/



What do you do after you go through a spinal cord injury or other physical disability in Alberta?

You turn to Spinal Cord Injury Alberta. Find hope. Connect to others to help you overcome obstacles. Start rebuilding together.  














For over 50 years, we have been bringing hope to individuals and families facing difficult times. 


We are there to help you overcome setbacks and celebrate your successes.                                  



The number of Canadians with hearing, mobility and vision challenges increases every year. It’s predicted that by 2036, 1 in 5 Canadians will identify as having a disability. While we’ve made great strides to make our country accessible for everyone, there’s still a lot of work we need to do. 

Visit pushforaccess.ca and show your support for National AccessAbility Week and an accessible Canada by joining the online community of access supporters. Spread awareness and inspire others by sharing your support on social media.

Also attached are suggested social media posts and web/email copy we hope you’ll use to promote the #pushforaccess initiative.

Thank you,
The Rick Hansen Foundation Team








SCI Canada Scholarships


SCI Canada provides scholarships annually to support students who live with a spinal cord injury or related disability with expenses for post-secondary education.


Six scholarships of $500 each will be awarded annually.


Applicants are invited to fill in and submit the application available here no later than Aug. 15 2017


SCI Canada thanks Sun Life Financial and the Chopnick/Hilliard fund for supporting this scholarship program.



Monte Perepelkin's autobiography "A Perfect Life"  goes on sale June 28th.

Book Release Event & Presale Order Information







Learn More About This Exciting New Opportunity










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